We are officially 4 months out from the Fotan. I had more anxiety about this fontan than all previous surgeries combined. It is so much harder the older they get…..it does not get any easier, it gets way harder. I remember thinking when we were singing Logan to sleep while his sedative took effect before […]
Read more
Countdown to Surgery- The Fontan
I am a disaster. We are leaving for Boston this weekend. I would give anything in the world not to go back. This life is so very unfair. I can’t believe he has to go thru this again. We have decided to rent an apartment in case we are there for a long period of time […]
Read moreSurgery Date.
So we got the call today. The call from….scheduling. I knew this day was coming. But to hear a date. An actual pre-op, cath, and surgery date has literally made me sick to my stomach. The worst part…we have to be there June, 8th….his birthday. It’s like a sick joke. Having a very very hard […]
Read more
December 3, 2012 





