The Month of February is Congenital Heart Disease Awareness Month. Today had me thinking about the last 3 years and everything we have been thru. Honestly, I don’t know how I got thru it. From getting the devastating diagnosis that kept getting worse every single time we saw a new doctor, to having to rock him in […]
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Holiday Update
We had a terrific Christmas this year. The last two years I wasn’t sure if Logan was going to live or die and it was pretty hard to really enjoy them. This year I had a ton of Christmas spirit and really enjoyed the season. I don’t know what is going to happen next year […]
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Fontan Update
We are officially 4 months out from the Fotan. I had more anxiety about this fontan than all previous surgeries combined. It is so much harder the older they get…..it does not get any easier, it gets way harder. I remember thinking when we were singing Logan to sleep while his sedative took effect before […]
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Countdown to Surgery- The Fontan
I am a disaster. We are leaving for Boston this weekend. I would give anything in the world not to go back. This life is so very unfair. I can’t believe he has to go thru this again. We have decided to rent an apartment in case we are there for a long period of time […]
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Logie in the Pool!
\ Just wanted to share a quick video of Logie playing in his little pool! He has been having so much fun with the nice weather we have been having.All of this exercise has really built him a little appetite too. He is eating foods that he normally wouldn’t even try, he is loving mashed […]
Read moreSurgery Date.
So we got the call today. The call from….scheduling. I knew this day was coming. But to hear a date. An actual pre-op, cath, and surgery date has literally made me sick to my stomach. The worst part…we have to be there June, 8th….his birthday. It’s like a sick joke. Having a very very hard […]
Read moreHow Logie is getting around.
See what I mean about him being the cutest thing ever? I am not biased at all!!!
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What is Logie up to?
Logan has made so many strides lately! He is doing just terrific. One of the greatest things that we ended up doing was hiring a nanny. This was tough to do because its hard to turn over control, and it takes a lot for us heart Mom’s to trust anyone with our kids but it […]
Read moreSurgery Time
So, I have not updated in a long time. Well, actually about 6 weeks. I have been spending all of my free time in organizing the new Heterotaxy Network website and forums, and trying to just decompress a little and enjoy the non-surgical months a bit. I found out that Logan needs to have his […]
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Big Week For Logan
So Logan had a huge developmental week! Just in one week, Logan started saying HI, clapping, and sitting up unsupported! It is fantastic to see him developing and he is so ecstatic to be able to do these things. He also tried a few new foods which is encouraging. He typically only takes a few […]
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February 2, 2013 





