I am a disaster. We are leaving for Boston this weekend. I would give anything in the world not to go back. This life is so very unfair. I can’t believe he has to go thru this again. We have decided to rent an apartment in case we are there for a long period of time […]
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Logie in the Pool!
\ Just wanted to share a quick video of Logie playing in his little pool! He has been having so much fun with the nice weather we have been having.All of this exercise has really built him a little appetite too. He is eating foods that he normally wouldn’t even try, he is loving mashed […]
Read moreSurgery Time
So, I have not updated in a long time. Well, actually about 6 weeks. I have been spending all of my free time in organizing the new Heterotaxy Network website and forums, and trying to just decompress a little and enjoy the non-surgical months a bit. I found out that Logan needs to have his […]
Read moreBaby Pierce Update
Just got off the phone with Jessamyn and Pierce is doing astoundingly well. For a family that was told surgery would most likely be a death sentence things have really turned around since Pierce was in Boston. Pierce had surgery on Monday afternoon, went in around 1pm and came out around 8pm and has since, […]
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The Heterotaxy Network
First, I am sorry for my lack of updating this blog lately. I have been focusing much of my attention on getting our new Heterotaxy Network site up and running. This is incredibly important to me. This syndrome is so rare that in order to really understand what is working for them and what isn’t […]
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June 1, 2012 





