So Logan had a huge developmental week! Just in one week, Logan started saying HI, clapping, and sitting up unsupported! It is fantastic to see him developing and he is so ecstatic to be able to do these things. He also tried a few new foods which is encouraging. He typically only takes a few […]
Read moreHeterotaxy – A Definition
-
Collaterals.
January 6, 2011
-
The Pediatrician.
April 20, 2011
-
Long overdue update.
May 16, 2011
- There is no place like home. June 25, 2010
-
A Double Lung and Heart Transplant???
February 9, 2011
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I wear red for Logan.
February 2, 2013
- Logie Video January 18, 2013
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Holiday Update
January 12, 2013
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Fontan Update
December 3, 2012
- Home From The Fontan November 25, 2012
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Christa: You are such a strong woman/mommy! What an inspira...
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Jessica: I'm not sure if this site is still active. However...
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Veronica S.: What a smartie! Go Logie!...
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giskfaith: My daughter earned her angel wings on September 3,...
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kristenspyker: hahaha...mainly because it hasn't changed. He is ...
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Blogs I Follow
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What is Heterotaxy Syndrome?
It is a the most rare and complex congenital heart diesease you can have. I actually purchased the ironically named book called the Complete Guide to Congenital Heart Diesease and Logan's condition wasn't even in there. It is actually more acurrately a whole body diesease affecting most organs in your body. It is very confusing and hard to understand I will try to explain what this diesease is in a very simplified way and then give you the exact list of what Logan's diagnosis is.
A little background first, every organ in our body is associated with either the left or the right side of our body. Strangely enough most our organs are associated with the right side the spleen being the organ associated with the left side. Logan has right sided isomerism (some babies have left sided isomerism) which means that sometime very early in pregnancy when the fetus is splitting into the right and left sides of the body something went wrong or more technically speaking there was an 'inability of the complex asymmetrical connections to develop correctly.' So, Logan body cavity has only a right side and no left side. That means the stomach and liver are midline (down the middle not on one side or the other) he has no spleen, and only the right half of a heart.
Logan’s Diagnosis
Heterotaxy Information
- CHOP – Children's Hospital of Philidelphia More information about Heterotaxy from Children’s Hospital of Philedelphia
- Congenital Heart Diease – AHA More information about specific defects.
- Contact Info. for Dr. Patel Our Cardiologist
- Asplenia Medical information about Asplenia
- Intestinal Malrotation Medical information about intestinal malrotation
- The Heterotaxy Network
CHD Advocacy
- 1in100 Know More. Do More.
- Children's Heartlink Healing Hearts Worldwide
- Congenital Heart Defects Tools and Resources Info. from the American Heart Association on CHDs.
- Congenital Heart Information Network
- Time To Talk Cardio Creating a Real Dialogue In the Office
CHD Advocacy
Heterotaxy Charities
Heterotaxy Information
-
Collaterals.
January 6, 2011
-
The Pediatrician.
April 20, 2011
-
Long overdue update.
May 16, 2011
- There is no place like home. June 25, 2010
-
A Double Lung and Heart Transplant???
February 9, 2011
-
I wear red for Logan.
February 2, 2013
- Logie Video January 18, 2013
-
Holiday Update
January 12, 2013
-
Fontan Update
December 3, 2012
- Home From The Fontan November 25, 2012
-
Christa: You are such a strong woman/mommy! What an inspira...
-
Jessica: I'm not sure if this site is still active. However...
-
Veronica S.: What a smartie! Go Logie!...
-
giskfaith: My daughter earned her angel wings on September 3,...
-
kristenspyker: hahaha...mainly because it hasn't changed. He is ...
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January 18, 2012 





