The Month of February is Congenital Heart Disease Awareness Month. Today had me thinking about the last 3 years and everything we have been thru. Honestly, I don’t know how I got thru it. From getting the devastating diagnosis that kept getting worse every single time we saw a new doctor, to having to rock him in […]
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Meet Baby Pierce
Meet Baby Pierce. He has a very similar type of Heterotaxy that Logan has. Jessamyn (Pierce’s Mother), myself, and many others fought like mad to get him transferred to a heart center that has more experience with these types of children. That was going to be his only shot at living. Pierce is so sick […]
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The Heterotaxy Network
First, I am sorry for my lack of updating this blog lately. I have been focusing much of my attention on getting our new Heterotaxy Network site up and running. This is incredibly important to me. This syndrome is so rare that in order to really understand what is working for them and what isn’t […]
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February 2, 2013 





