Heterotaxy Syndrome

Holiday Update

January 12, 2013 by kristenspyker 1 Comment

We had a terrific Christmas this year. The last two years I wasn’t sure if Logan was going to live or die and it was pretty hard to really enjoy them. This year I had a ton of Christmas spirit and really enjoyed the season. I don’t know what is going to happen next year […]

Dr. pedro del nido, Heterotaxy Syndrome, Right Atrial Isomerism

Countdown to Surgery- The Fontan

June 1, 2012 by kristenspyker 10 Comments

I am a disaster. We are leaving for Boston this weekend. I would give anything in the world not to go back. This life is so very unfair. I can’t believe he has to go thru this again. We have decided to rent an apartment in case we are there for a long period of time […]

cavopulmonary connection, Heterotaxy, pedro del nido, Right Atrial Isomerism, The Fontan

What is Logie up to?

March 25, 2012 by kristenspyker 4 Comments

Logan has made so many strides lately! He is doing just terrific. One of the greatest things that we ended up doing was hiring a nanny. This was tough to do because its hard to turn over control, and it takes a lot for us heart Mom’s to trust anyone with our kids but it […]

Fontan, Heterotaxy Syndrome, Right Atrial Isomerism

Big Week For Logan

January 18, 2012 by kristenspyker 6 Comments

So Logan had a huge developmental week! Just in one week, Logan started saying HI, clapping, and sitting up unsupported! It is fantastic to see him developing and he is so ecstatic to be able to do these things. He also tried a few new foods which is encouraging. He typically only takes a few […]

Fontan, Glenn, Pedro Del Ndio, Right Atrial Isomerism

Happy Thanksgiving

November 25, 2011 by kristenspyker 2 Comments

Although, Logan didn’t eat any turkey he ate about a bazillion bread and muffin crumbs Happy Thanksgiving from Scott, Kristen, Ethan, and Logan.

Logan Update

November 15, 2011 by kristenspyker 1 Comment

I have not been meaning to keep everyone in the dark about Logan and his progress. I don’t really know what is going on with me. I think after 18 months of this being my reality its still really tough to write about him and his progress (or lack their of). When I found out […]

dr. del nido, failure to thrive, feeding issues, Fontan, Heterotaxy Syndrome, single ventricle

The Food Battle Continues….

September 15, 2011 by kristenspyker 10 Comments

So, I have not been updating lately. I guess life has just been too crazy. Logan is doing GREAT!!! I feel finally that for the first time in his life he is a (relatively) normal baby that is happy and playful. His oxygen levels are definitely up and it is making a huge difference in his […]

More Reflecting…

June 27, 2011 by kristenspyker 3 Comments

I took the above picture of Logan and it reminded me so much of one of my favorite pictures that I took of him when he was a newborn. The last year has been such a daze…I barely even remember some parts. Like when he was 1-4 months old and he had continual blue spells […]

Long overdue update.

May 16, 2011 by kristenspyker 12 Comments

So after being very confused about how Logan can be doing so great heart wise and yet still be blue and breathing heavy, I pushed Dr. Patel to do an echo sooner rather than later. For my own piece of mind I just couldn’t wait another 2 weeks. My biggest fear was that he had […]

Confused.

May 1, 2011 by kristenspyker 4 Comments

So we met with the second GI on Tues. and without boring you with the details I feel much more comfortable with the GI doctor at the Cleveland Clinic. He sees two other Heterotaxy patients and he is interested in kids with congenital heart disease. I was concentrating so hard to take one of […]