Archive | The Cleveland Clinic RSS feed for this section
8.11 165

I have no idea what the title of this post should be!

I have been avoiding updating on here and I am not exactly even sure why.  Everything is so up and down and all over the place that it never seems like a good time to update.  I tell myself that I will update once a decision is made, or we have a better plan.  But […]

Read more
4.11 038

The Gastroenterologist.

On Tues we saw Logan’s gastroenterologist.  I was NOT excited about this appointment for two reasons.  One being I felt very blown off by him in the last couple weeks and the second reason was that his main area is NUTRITION.   Thank goodness I got Logan to gain that pound when I did because ever […]

Read more
2.11 013

A Double Lung and Heart Transplant???

So in my previous post I wrote that I was very nervous for our appointment at the cleveland clinic and that I couldn’t put my finger on the exact reason why.  Well, for whatever reason my instinct was right and this appointment was anything but what we were expecting.  When the doctor came in he talked […]

Read more
edited4

Sunday Night.

I am a little nervous for our appointment at the cleveland clinic tomorrow.  I can’t even put my finger on what I am so nervous about.  I guess you always have this fear that they are going to find something.  It will most likely be a long day.  We have a radiology appointment first (chest […]

Read more
edited2

The Cleveland Clinic

Dr. Patel saw Logan on Tues. and talked with Logan’s cardiologist at Boston on Tues.  Actually Dr. Marx from Boston called at 2pm the exact same time Logan’s app. was.  What are the odd’s of that?   (Scott getting Logan into his car seat for our appointment)  Anyway, the doctors at Boston concluded that they […]

Read more

Because I Said So

The Story of a little boy born with Heterotaxy Syndrome

Immortal Bird Postscript

Doron Weber on Immortal Bird Aftermath

Rachel Amariah

The Story of a little boy born with Heterotaxy Syndrome

BrooklyntheBrave and her journey with Heterotaxy

The Story of a little boy born with Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

When Life Hands You A Broken Heart

The Story of a little boy born with Heterotaxy Syndrome

Learning From Faith

The Story of a little boy born with Heterotaxy Syndrome

Zoe Fiona-Grace's Story

The Story of a little boy born with Heterotaxy Syndrome

4brokenhearts

A mother of three children with complex heart defects due to Heterotaxy Syndrome awaits the birth of her first grandchild, who also is affected.

The Simmons Family

The Story of a little boy born with Heterotaxy Syndrome

Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

Ava Alexandra Navarrette

The story of a baby girl with Heterotaxy who died only 22 hours after birth.

Follow

Get every new post delivered to your Inbox.

Join 145 other followers