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I wear red for Logan.

The Month of February is Congenital Heart Disease Awareness Month. Today had me thinking about the last 3 years and everything we have been thru. Honestly, I don’t know how I got thru it. From getting the devastating diagnosis that kept getting worse every single time we saw a new doctor, to having to rock him in […]

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Last Night

This is it, the last night before Logan is born.  I am sooo not ready but surprisingly numb.  I had a few little breakdowns thru the day but otherwise just been busy getting ready.  Another sad thing that is going on is that while I am in the hospital someone is coming to take two […]

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Last OB Appointment.

We had our last OB appt. today.  We had our last ultrasound and our last NST.  Everything looked good on the Ultrasound.  Logan measured 6 lbs. 6 oz. (+/-  1 pound) puts him at 35% for weight.  Umbilical cord pressures were fine and our NST was perfect.  I met Dr. Lanvin for the first time he is […]

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Count Down to Baby.

It is one week from today that I will be delivering Logan via C-section (unless I go into labor before then, obviously).  I am getting pretty nervous.  It hit me last night that on top of everything else, I am going to have to have major surgery, which I am not looking forward too.  The […]

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Where we are now.

This was the email update I sent out to friends and family on Wed. the 19th.    We had another super long day at the children’s Hosp. yesterday.  9AM-3PM with no breaks.  I was starving.  We had our last Fetal Echo which took a long time because babies’ bones are calcified now and all the […]

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This is where our fetal echocardiogram and future ones are done.

The begining.

My pregnancy has been really hard from day.  I suffered from Hyperemesis (really bad morning sickness) for 6 months.  Hyperemesis is where you literally can not keep any food and very few liquids down.  I would throw up 15 times a day.  I was like having a really bad stomach flu for 6 months.  It […]

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The Story of a little boy born with Heterotaxy Syndrome

Immortal Bird Postscript

Doron Weber on Immortal Bird Aftermath

Rachel Amariah

The Story of a little boy born with Heterotaxy Syndrome

BrooklyntheBrave and her journey with Heterotaxy

The Story of a little boy born with Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

When Life Hands You A Broken Heart

The Story of a little boy born with Heterotaxy Syndrome

Learning From Faith

The Story of a little boy born with Heterotaxy Syndrome

Zoe Fiona-Grace's Story

The Story of a little boy born with Heterotaxy Syndrome

4brokenhearts

A mother of three children with complex heart defects due to Heterotaxy Syndrome awaits the birth of her first grandchild, who also is affected.

The Simmons Family

The Story of a little boy born with Heterotaxy Syndrome

Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

Ava Alexandra Navarrette

The story of a baby girl with Heterotaxy who died only 22 hours after birth.

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