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8.11 165

I have no idea what the title of this post should be!

I have been avoiding updating on here and I am not exactly even sure why.  Everything is so up and down and all over the place that it never seems like a good time to update.  I tell myself that I will update once a decision is made, or we have a better plan.  But […]

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4.11 038

The Gastroenterologist.

On Tues we saw Logan’s gastroenterologist.  I was NOT excited about this appointment for two reasons.  One being I felt very blown off by him in the last couple weeks and the second reason was that his main area is NUTRITION.   Thank goodness I got Logan to gain that pound when I did because ever […]

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Rectal Prolapse…Ugh.

So after a few days of SEVERE constipation and some rectal prolapse, Logan began having fairly significant rectal bleeding.  I called his GI doctor and his pediatrician and they wanted me to take him to the emergency room.   I  was so angry because you can’t just take a baby like Logan to the ER.  Everytime we […]

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Because I Said So

The Story of a little boy born with Heterotaxy Syndrome

Immortal Bird Postscript

Doron Weber on Immortal Bird Aftermath

Rachel Amariah

The Story of a little boy born with Heterotaxy Syndrome

BrooklyntheBrave and her journey with Heterotaxy

The Story of a little boy born with Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

When Life Hands You A Broken Heart

The Story of a little boy born with Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

Zoe Fiona-Grace's Story

The Story of a little boy born with Heterotaxy Syndrome

4brokenhearts

A mother of three children with complex heart defects due to Heterotaxy Syndrome awaits the birth of her first grandchild, who also is affected.

The Simmons Family

The Story of a little boy born with Heterotaxy Syndrome

Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

Ava Alexandra Navarrette

The story of a baby girl with Heterotaxy who died only 22 hours after birth.

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