Heterotaxy Syndrome

 Wed.  (6/16) I was very anxious to hear what the results of the cath. conference were and got there pretty early.  Guess who was there.  Yes, it was another day of Humpty Dumpty (see previous post).  I had yet to this point had the same nurse twice so it didn’t even occur to me that […]

Sun. was just a quiet day at the NICU, not many Dr.’s were around and Logan ate well, and we just cuddled him all day.  He oxygen levels were coming down (which is good for him) and they were looking to be more in the mid 80′s instead of the 90′s.  We were told if […]

We had a VERY good two days.  On the 4th day we started out talking with the surgeon again and the conversation went much better.  He was less aggressive about surgery talk and even told us it was looking like we wouldn’t need surgery next week.  I am wondering if maybe he had a talk […]

First, I just want to thank everyone for their support.  Everyone has been really wonderful. Yesterday was quite a roller coaster ride.  We started off the day with great news.  Logan had his umbilical line taken out which is great news, its much easier to handle him without it.  He is doing so good that […]

Welcome little Logan 6 lbs. 4 oz. This is Logan in his transport carrier about to be taken from Akron general to Akron Children’s Hosp. As soon as he was out they took him out of the OR (I did not even get to see him) they took him to another room to get all […]