Heterotaxy Syndrome

Happy Thanksgiving

November 25, 2011 by kristenspyker 2 Comments

Although, Logan didn’t eat any turkey he ate about a bazillion bread and muffin crumbs Happy Thanksgiving from Scott, Kristen, Ethan, and Logan.

Fontan Talk….

November 23, 2011 by kristenspyker 6 Comments

So. The echo looked good from what you can see on an echo…ventricular function looked good, his ‘sutureless repair’ (for his pulmonary vein stenosis) was wide open with no obvious narrowing, and his Glenn was working well. Things that we don’t know right now are the severity of his collateral growth and what his pressures […]

Adult Fontan, Fontan, Fontan mortality

No Echo….

November 19, 2011 by kristenspyker 2 Comments

SO. Burnt out, fried, and extremely nervous Mom got the appt. dates wrong. UGH………. Logan’s app was on Tues., not on Thurs. so I had missed it. Did the heart center call me? NO. argggg… Anyway, echo is rescheduled for Mon. So I get to worry about this all weekend now, great! I have good […]

Echocardiogram, Heterotaxy Syndrome, logan spyker, pulmonary vein stenosis, Right Atrial Isomerism, ventricular function

Logan Update

November 15, 2011 by kristenspyker 1 Comment

I have not been meaning to keep everyone in the dark about Logan and his progress. I don’t really know what is going on with me. I think after 18 months of this being my reality its still really tough to write about him and his progress (or lack their of). When I found out […]

dr. del nido, failure to thrive, feeding issues, Fontan, Heterotaxy Syndrome, single ventricle

The Heterotaxy Network

November 10, 2011 by kristenspyker 6 Comments

First, I am sorry for my lack of updating this blog lately. I have been focusing much of my attention on getting our new Heterotaxy Network site up and running. This is incredibly important to me. This syndrome is so rare that in order to really understand what is working for them and what isn’t […]