Archive | June, 2011
6.11 242

More Reflecting…

I took the above picture of Logan and it reminded me so much of one of my favorite pictures that I took of him when he was a newborn.  The last year has been such a daze…I barely even remember some parts.  Like when he was 1-4 months old and he had continual blue spells […]

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6.11 005

Reflecting…

  While Logan has turned one years old it has left me with much time to think about the last year.  When we got the diagnosis, how devasted we were.  I think back to that period and I can’t believe how little I understood and how little I knew about what life was really going […]

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6.11 029

Happy Birthday Logan!

  Dear Logan,  I know that you hated your party, I know that you would have preferred to be cuddled up with your blanket all alone and watching cartoons, than have all these people over but, so many people love you and we just had to celebrate your life.  I know you wanted nothing to do […]

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Because I Said So

The Story of a little boy born with Heterotaxy Syndrome

Immortal Bird Postscript

Doron Weber on Immortal Bird Aftermath

Rachel Amariah

The Story of a little boy born with Heterotaxy Syndrome

BrooklyntheBrave and her journey with Heterotaxy

The Story of a little boy born with Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

When Life Hands You A Broken Heart

The Story of a little boy born with Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

Zoe Fiona-Grace's Story

The Story of a little boy born with Heterotaxy Syndrome

4brokenhearts

A mother of three children with complex heart defects due to Heterotaxy Syndrome awaits the birth of her first grandchild, who also is affected.

The Simmons Family

The Story of a little boy born with Heterotaxy Syndrome

Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

Ava Alexandra Navarrette

The story of a baby girl with Heterotaxy who died only 22 hours after birth.

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