Archive | March, 2011
3.11 040

Echo Results.

  So, yesterday we went back to see Dr. Patel.  I have been very worried about his respiratory rate  (this was how our last open heart surgery journey began afterall) so I was VERY anxious for this appointment.  First I have to start with the GREAT news.  Logan gained A POUND!!! I knew he gained weight […]

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Milestones.

So another BIG milestone for Logan he enjoyed a bath for the first time in his entire life.  As a newborn he hated them and with his blue spells I couldn’t give him one because I was constantly trying to calm him down not get him worked up.  And again after his Glenn his SVC […]

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3.11 003

Weight gain and Feeding Issues.

Well goods news first right? Logan is now officially outgrown 0-3 months clothes, yay!!! I got to go thru his clothes and remove all the 0-3 months clothes and pull out a whole new batch of 3-6 months clothes.   What I also was looking at when I was going thru all his clothes is […]

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Echo Results.

So the results are in and Logan’s echo looks fantastic.  The Sutureless repair on the TAPVR still looks wide open and has great blood flow.  All four pulmonary veins appear to have great blood flow.  His Bi-directional Glenn looks good, his valve is actually stenotic (too tight) now and is causing some dialation because the […]

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3.11 018

Appointment.

Well that was one of the most unsatisfying Dr. appt’s ever.  Dr. Patel first inclination was that Logan could be having some fluid in his lungs.  He thought since we stopped the lasix while he had his stomach bug that maybe puffed back up after the stomach bug was gone.  We went down and had […]

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Pictures.

Welcome back oral aversions, not very happy to see you again.  These teething biscuits are the only thing Logan will eat right now because he doesn’t want anyone putting anything in or near his mouth.  (Thanks nurses that didn’t listen to me about how to give him his meds.)   New Moose which he loooooves! […]

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Very Nervous.

So for the last few days Logan has been breathing hard…again.  When he is sleeping or resting his breathing is fine and normal but when he playing with a toy or moving around at all he is out of breath.  I haven’t used his Pulse Ox machine very much because he did so good after […]

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Post Op Results.

First, I should say that Monday night Logan started to feel better.  It was the first night that we saw symptoms of the flu starting to reside.  Tues. morning he was back to his smiley self.  This was a HUGE relief to me because I was starting to wonder if he just wasn’t going to […]

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The Story of a little boy born with Heterotaxy Syndrome

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The Story of a little boy born with Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

Zoe Fiona-Grace's Story

The Story of a little boy born with Heterotaxy Syndrome

4brokenhearts

A mother of three children with complex heart defects due to Heterotaxy Syndrome awaits the birth of her first grandchild, who also is affected.

The Simmons Family

The Story of a little boy born with Heterotaxy Syndrome

Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

Ava Alexandra Navarrette

The story of a baby girl with Heterotaxy who died only 22 hours after birth.

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