Archive | February, 2011
2.11 277

Coming home…

Again, these are updates taken off of Facebook where I have been updating the last week…. Feb. 18th Yesterday Logan got completely unhooked from everything. His pacing wires came out, his A line came out, NG (feeding tube) out, and IJ (a line in the Jugular) came out!!! He is now off all IV medications […]

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Open Heart Surgery and then some….

Monday morning first case Logan had his open heart surgery to fix his TAPVR scar tissue issue.  I updated about his progress on Facebook and I am going to cut and paste everything on here to keep it all on one place.  It was quite a week to say the least…. Feb 12th – The […]

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BOSTON2 223

Open Heart Surgery…again

Well this has been one hell of a week.  Logan did great on the plane, slept the entire time.  We arrived in Boston at 7pm and took Logan to the ER just like we were told to do.  We were under the impression that it was going to be just checking his pulse ox and […]

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A Double Lung and Heart Transplant???

So in my previous post I wrote that I was very nervous for our appointment at the cleveland clinic and that I couldn’t put my finger on the exact reason why.  Well, for whatever reason my instinct was right and this appointment was anything but what we were expecting.  When the doctor came in he talked […]

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Sunday Night.

I am a little nervous for our appointment at the cleveland clinic tomorrow.  I can’t even put my finger on what I am so nervous about.  I guess you always have this fear that they are going to find something.  It will most likely be a long day.  We have a radiology appointment first (chest […]

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The Cleveland Clinic

Dr. Patel saw Logan on Tues. and talked with Logan’s cardiologist at Boston on Tues.  Actually Dr. Marx from Boston called at 2pm the exact same time Logan’s app. was.  What are the odd’s of that?   (Scott getting Logan into his car seat for our appointment)  Anyway, the doctors at Boston concluded that they […]

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Because I Said So

The Story of a little boy born with Heterotaxy Syndrome

Immortal Bird Postscript

Doron Weber on Immortal Bird Aftermath

Rachel Amariah

The Story of a little boy born with Heterotaxy Syndrome

BrooklyntheBrave and her journey with Heterotaxy

The Story of a little boy born with Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

When Life Hands You A Broken Heart

The Story of a little boy born with Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

Zoe Fiona-Grace's Story

The Story of a little boy born with Heterotaxy Syndrome

4brokenhearts

A mother of three children with complex heart defects due to Heterotaxy Syndrome awaits the birth of her first grandchild, who also is affected.

The Simmons Family

The Story of a little boy born with Heterotaxy Syndrome

Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

Ava Alexandra Navarrette

The story of a baby girl with Heterotaxy who died only 22 hours after birth.

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