Heterotaxy Syndrome

Two days before Surgery.

October 24, 2010 by kristenspyker 4 Comments

So it is Sat. night I am at the hotel one block away, Scott is sleeping at the hospital (only one parent at a time so we are rotating). After Logan was admitted they though he looked pretty good. I think they were just nervous having not seen him when we spoke on the phone. […]

Logan now on Facebook.

October 22, 2010 by kristenspyker 0 Comments

I created a FB page because it will be much easier to update than this blog while we are in the hospital. Also, I can update FB from the phone. Sign up to be his friend and follow him there. I will continue to blog here but it will be significantly less (I am imagining) […]

Children's Hospital of Boston

Can’t Sleep.

October 22, 2010 by kristenspyker 6 Comments

So I have been holding it together really well so far (up until about 3 hours ago). I am now officially terrified. My stomach is churning. I can’t sleep. I can’t stop thinking about the what ifs. What if this is the last night that we will ever all be together at home. […]

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Children’s Hospital of Boston.

October 21, 2010 by kristenspyker 9 Comments

Dr. Patel saw Logan this morning and thought he looked good. No decline or anything in the last 2 days. We are going to take a commerical flight tomorrow morning at 6AM to the aptly named Logan airport in Boston. We arrive at 10AM and we will go right to the hospital to check in. […]

Children's Hospital of Boston

Severe AV Valve Regurgitation.

October 21, 2010 by kristenspyker 8 Comments

I am going to explain this in a very over simplified way but for the sake of boring you lets just say that Logan only has the blue part of the above heart. In a healthy heart the left side has a mitral valve and the right side has the tricuspid valve. When you have a […]

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Feeling Better.

October 16, 2010 by kristenspyker 5 Comments

Logan is feeling a lot better. He is still a little hoarse but overall he’s doing pretty good. He is smiling again and giggling. I would say overall he still behaves much like a newborn even though he is now 4 months old. He still sleeps 15-18 hours a day, and still needs to eat […]

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Look At You Now.

October 14, 2010 by kristenspyker 2 Comments

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Heterotaxy Hope.

October 11, 2010 by kristenspyker 0 Comments

I just got an email from the organization Heterotaxy Hope Organization letting me know that they now have a new shipment of bracelets in…please help support this organization. Welcome to the Heterotaxy Hope Bracelets for Bracelets page. On this page, you may donate to Heterotaxy Hope. For a donation of $2.50, you will receive a […]

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We have a date.

October 10, 2010 by kristenspyker 6 Comments

November 17 is the date of Logan’s OHS. We have to be there Nov. 16th for a whole day of testing. I don’t even know how to feel about that date being set. I don’t think the reality of that has really sunk in. CHOP called yesterday morning while we were at our local children’s hospital. […]

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Finally Home.

October 9, 2010 by kristenspyker 2 Comments

After a day of ups and downs with the staff at this hospital (OK more downs than ups) we are back home. I am so tired I bet I have slept 5 hours in the last three days. I am going to get some sleep and I will go into more detail tomorrow but Logan […]

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