Archive | July, 2010

Appointments…

 Tues.  Logan had a pediatrician appointment.  He 7 lbs. 15 oz.  Which is really good.  She couldn’t believe how he was growing.  She said that most heart babies stay pretty flat for a while or they just increase so slow.  He is growing at a 45 degree angle on the chart so that is really […]

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Back in the Hospital.

 This post is a little late, but I will tell, you get so exhausted that when an ordeal is all over you don’t even want to talk about it. Last tues. Logan was really upset about something.  He appeared to be in a lot of pain and was completely inconsolable.  He was also vomiting with […]

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Appointments…

Last week  Logan went back to the pediatrician yesterday for a weight check and hewas 6 lb 13 oz.  That means he has gained over a pound since he has been home.  I couldn’t believe it.  My first (healthy) son didn’t gain weight that quick.    They couldn’t believe his NG tube was out and how […]

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Because I Said So

The Story of a little boy born with Heterotaxy Syndrome

Immortal Bird Postscript

Doron Weber on Immortal Bird Aftermath

Rachel Amariah

The Story of a little boy born with Heterotaxy Syndrome

BrooklyntheBrave and her journey with Heterotaxy

The Story of a little boy born with Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

When Life Hands You A Broken Heart

The Story of a little boy born with Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

Zoe Fiona-Grace's Story

The Story of a little boy born with Heterotaxy Syndrome

4brokenhearts

A mother of three children with complex heart defects due to Heterotaxy Syndrome awaits the birth of her first grandchild, who also is affected.

The Simmons Family

The Story of a little boy born with Heterotaxy Syndrome

Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome

Ava Alexandra Navarrette

The story of a baby girl with Heterotaxy who died only 22 hours after birth.

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