Heterotaxy Syndrome

Archive | May, 2010

Where we are now.

May 22, 2010 by kristenspyker 0 Comments

This was the email update I sent out to friends and family on Wed. the 19th. We had another super long day at the children’s Hosp. yesterday. 9AM-3PM with no breaks. I was starving. We had our last Fetal Echo which took a long time because babies’ bones are calcified now and all the […]

Pregnancy and Diagnosis

This is where our fetal echocardiogram and future ones are done.

The begining.

May 15, 2010 by kristenspyker 5 Comments

My pregnancy has been really hard from day. I suffered from Hyperemesis (really bad morning sickness) for 6 months. Hyperemesis is where you literally can not keep any food and very few liquids down. I would throw up 15 times a day. I was like having a really bad stomach flu for 6 months. It […]

Pregnancy and Diagnosis

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Collaterals. January 6, 2011
The Pediatrician. April 20, 2011
Long overdue update. May 16, 2011
There is no place like home. June 25, 2010
A Double Lung and Heart Transplant??? February 9, 2011

I wear red for Logan. February 2, 2013
Logie Video January 18, 2013
Holiday Update January 12, 2013
Fontan Update December 3, 2012
Home From The Fontan November 25, 2012

What is Heterotaxy Syndrome?

It is a the most rare and complex congenital heart diesease you can have. I actually purchased the ironically named book called the Complete Guide to Congenital Heart Diesease and Logan's condition wasn't even in there. It is actually more acurrately a whole body diesease affecting most organs in your body. It is very confusing and hard to understand I will try to explain what this diesease is in a very simplified way and then give you the exact list of what Logan's diagnosis is.

A little background first, every organ in our body is associated with either the left or the right side of our body. Strangely enough most our organs are associated with the right side the spleen being the organ associated with the left side. Logan has right sided isomerism (some babies have left sided isomerism) which means that sometime very early in pregnancy when the fetus is splitting into the right and left sides of the body something went wrong or more technically speaking there was an 'inability of the complex asymmetrical connections to develop correctly.' So, Logan body cavity has only a right side and no left side. That means the stomach and liver are midline (down the middle not on one side or the other) he has no spleen, and only the right half of a heart.