\ Just wanted to share a quick video of Logie playing in his little pool! He has been having so much fun with the nice weather we have been having.All of this exercise has really built him a little appetite too. He is eating foods that he normally wouldn’t even try, he is loving mashed [...]
Read moreSurgery Date.
April 6, 2012
9 Comments
So we got the call today. The call from….scheduling. I knew this day was coming. But to hear a date. An actual pre-op, cath, and surgery date has literally made me sick to my stomach. The worst part…we have to be there June, 8th….his birthday. It’s like a sick joke. Having a very very hard [...]
Read moreHow Logie is getting around.
March 26, 2012
1 Comment
See what I mean about him being the cutest thing ever? I am not biased at all!!!
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What is Logie up to?
March 25, 2012
4 Comments
Logan has made so many strides lately! He is doing just terrific. One of the greatest things that we ended up doing was hiring a nanny. This was tough to do because its hard to turn over control, and it takes a lot for us heart Mom’s to trust anyone with our kids but it [...]
Read moreSurgery Time
March 11, 2012
4 Comments
So, I have not updated in a long time. Well, actually about 6 weeks. I have been spending all of my free time in organizing the new Heterotaxy Network website and forums, and trying to just decompress a little and enjoy the non-surgical months a bit. I found out that Logan needs to have his [...]
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Big Week For Logan
January 18, 2012
6 Comments
So Logan had a huge developmental week! Just in one week, Logan started saying HI, clapping, and sitting up unsupported! It is fantastic to see him developing and he is so ecstatic to be able to do these things. He also tried a few new foods which is encouraging. He typically only takes a few [...]
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Christmas in Pictures
January 8, 2012
2 Comments
Christmas Eve Big Bro Ethan! My Mom bought this shirt for Logie. Just in case everyone doesn’t realize, Children’s Hospital of Boston is part of the Harvard Medical School! Ironically though, my Mother found this shirt in Florida! Lego Madness Christmas Morning Logan and his bed head. I think this has [...]
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All is Calm, All is Bright
December 25, 2011
1 Comment
Merry Christmas to all! and a very special Christmas wish to all the children celebrating Christmas in the hospital this year. Santa Claus was very very thoughtful this year and left a plane ticket to Boston in my stocking! He was thinking it would be nice for me to make a trip up there to meet Jessamyn [...]
Read morePierce featured on CHB’s Website
December 22, 2011
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Social media helps bring very sick patient to Children’s by Tripp Underwood on December 21, 2011 (taken from CHB’s blog) Pierce Heilinger recently underwent a complex surgery at Children’s Hospital Boston that may have saved his life. The young patient’s story has resonated deeply with parents who use social media, and even though many of [...]
Read moreBaby Pierce Update
December 21, 2011
3 Comments
Just got off the phone with Jessamyn and Pierce is doing astoundingly well. For a family that was told surgery would most likely be a death sentence things have really turned around since Pierce was in Boston. Pierce had surgery on Monday afternoon, went in around 1pm and came out around 8pm and has since, [...]
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Collaterals.
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The Pediatrician.
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Long overdue update.
- There is no place like home.
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A Double Lung and Heart Transplant???
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Jessica Makuh: I have the same concerns as you... "Have I done en...
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Paula: He is doing AMAZING!!! I remember last summer and...
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kristenspyker: Nope, he has all his surgeries done at CHB (Childr...
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Jana: Kristen, he is so adorable. I want to encourage yo...
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